SEND Directory

Independent Parental Special Education Advice (ISPEA) is the leading national charity in the field of SEND law in England.

They provide:

• Free and independent legal advice and support to families of children and young people with SEND. 
• Training on the SEND legal framework.
• Help children and young people with SEND get the education they are entitled to by law.

The Children’s Trust is the UK’s leading charity for children with brain injury. They deliver rehabilitation, education and community services through skilled teams who work with children and young people, and their families.

Unique is a charity that aims to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder, copy number variant or single gene disorder associated with learning disability/developmental delay.

They provide specialist information relating to hundreds of different rare chromosome disorders and autosomal single-gene disorders to inform parents, carers, and the professionals working with them.

The Children's Occupational Therapy Service in Haringey is an NHS-run service that helps children develop independence and participate as much as possible in daily activities like school, play, and self-care, such as dressing, using the toilet, and eating.

The service offers assessments, advice, and interventions for children aged 0-19 with neuro-developmental difficulties or complex special needs. They provide care at the Tynemouth Road Health Centre, in homes and schools, and through online sessions and phone consultations.

Mencap is a UK charity for people with learning disabilities. It supports people with learning disabilities, their families, carers, and professionals with help, advice, education, campaigns, activism, and more.

Scope is a charity in England and Wales dedicated to disability equality. They offer practical information, emotional support, family and employment services, and a wide range of advice and support, including information on benefits, legal matters, and disability equipment.

For more information or to access their advice and support, visit the Scope website.

Sense is a national charity that supports and campaigns for children and adults who are deafblind or who have complex disabilities to communicate.

They provide tailored support, advice, and information as well as specialist services to all deafblind people, their families, carers and the professionals who work with them.

In addition, they support people who have single sensory impairment with additional needs.

The Sleep Charity advocates for improved sleep support and access to free, high-quality information. 

SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).

Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include: