SEND Directory

Unique is a charity that aims to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder, copy number variant or single gene disorder associated with learning disability/developmental delay.

They provide specialist information relating to hundreds of different rare chromosome disorders and autosomal single-gene disorders to inform parents, carers, and the professionals working with them.

The Children’s Trust is the UK’s leading charity for children with brain injury. They deliver rehabilitation, education and community services through skilled teams who work with children and young people, and their families.

Rapid Effective Assistance for Children with potentially Terminal illness (REACT) is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK.

Helping children with life-shortening illnesses, React works to give children comfort, dignity, and, where possible, greater independence. 

Some of their support includes:

Newlife is the UK’s largest charitable provider of specialist equipment for disabled children.

Newlife offers a lifeline for families, providing life-changing and life-saving equipment when and where its needed. Alongside equipment, they campaign to improve the outlook for disabled children and change lives. They support parents, work with health professionals and strive for a future where all disabled children get the equipment they need and deserve.

Independent Parental Special Education Advice (ISPEA) is the leading national charity in the field of SEND law in England.

They provide:

• Free and independent legal advice and support to families of children and young people with SEND. 
• Training on the SEND legal framework.
• Help children and young people with SEND get the education they are entitled to by law.

Support for parents and carers who are experiencing difficulty in finding suitable childcare.

Family Fund is the UK's largest grant-making charity for families raising a disabled or seriously ill child, on a low income. Find out about the various grants they deliver, eligibility criteria and how to make an application on their website

Mencap is a UK charity for people with learning disabilities. It supports people with learning disabilities, their families, carers, and professionals with help, advice, education, campaigns, activism, and more.

The Children's Life Force Team is an NHS-run service of paediatric specialist nurses, respite nursery nurses, play specialists/youth workers and psychologists.

We treat children from 0-18 with a life-threatening or life-limiting condition and provide care and support to families in the boroughs of Camden, Haringey and Islington.
   
They aim to provide enhanced support to families and ensure choice in place of care, especially at the end of life.
 
Their team provides: