SEND Directory

Independent Parental Special Education Advice (ISPEA) is the leading national charity in the field of SEND law in England.

They provide:

• Free and independent legal advice and support to families of children and young people with SEND. 
• Training on the SEND legal framework.
• Help children and young people with SEND get the education they are entitled to by law.

The Children’s Trust is the UK’s leading charity for children with brain injury. They deliver rehabilitation, education and community services through skilled teams who work with children and young people, and their families.

Unique is a charity that aims to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder, copy number variant or single gene disorder associated with learning disability/developmental delay.

They provide specialist information relating to hundreds of different rare chromosome disorders and autosomal single-gene disorders to inform parents, carers, and the professionals working with them.

POhWER is a charity that offers free advocacy, information, and advice services to help people who find it difficult to express their views or access support due to disability, illness, social exclusion, or other challenges. 

In Haringey, POhWER provides services such as Independent Mental Capacity Advocacy (IMCA), Independent Mental Health Advocacy (IMHA), Independent Health Complaints Advocacy (IHCA), and Care Act Advocacy. These services empower individuals by ensuring their voices are heard and their rights upheld.

Scope is a charity in England and Wales dedicated to disability equality. They offer practical information, emotional support, family and employment services, and a wide range of advice and support, including information on benefits, legal matters, and disability equipment.

For more information or to access their advice and support, visit the Scope website.

Shine is a national charity providing specialist advice and support pre-birth and throughout life, to anyone with or affected by:

• Spina Bifida
• Hydrocephalus
• Normal Pressure Hydrocephalus
• Anencephaly
• Encephalocele - also may be known as Cranium Bifida
• Tethered Cord
• Idiopathic intracranial hypertension
• Chiari II Malformatio 

Shine provides a range of support such as benefits, support for carers, employment and disability, education, legal services and more. 

The Stroke Association supports individuals in rebuilding their lives after a stroke. They offer specialist support, fund research, and advocate for ensuring the best care and support for stroke survivors.

Childhood Stroke:

For those affected by childhood stroke, the Childhood Stroke Support team answers questions and connects individuals with practical information and guidance.

• Visit the Childhood Stroke website for more details
   

SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).

Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include: