SEND Directory

SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).

Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include:

The Tavistock and Portman NHS Foundation Trust is a specialist NHS mental health trust focused on training, education, and providing a full range of mental health services and therapies for children, families, young people, and adults.

Examples of their services include:

The Changing Places Map website is a database with 3,194 'Changing Places' toilets throughout the UK. 

There are 2299 facilities to the full specification that offer the facilities of a normal accessible toilet for disabled people but with extra features—7m² originally and now 12m² of space, an adult changing bench, and a hoist. These are essential for people who have a carer, have profound and multiple learning disabilities, or cannot reasonably use standard accessible toilets. You will need to bring your own sling.

Turn2us is a national charity offering information and practical help to people facing financial insecurity. Support includes a Grant Search tool and PIP helper