SEND Directory

Sense is a national charity that supports and campaigns for children and adults who are deafblind or who have complex disabilities to communicate.

They provide tailored support, advice, and information as well as specialist services to all deafblind people, their families, carers and the professionals who work with them.

In addition, they support people who have single sensory impairment with additional needs.

Shine is a national charity providing specialist advice and support pre-birth and throughout life, to anyone with or affected by:

• Spina Bifida
• Hydrocephalus
• Normal Pressure Hydrocephalus
• Anencephaly
• Encephalocele - also may be known as Cranium Bifida
• Tethered Cord
• Idiopathic intracranial hypertension
• Chiari II Malformatio 

Shine provides a range of support such as benefits, support for carers, employment and disability, education, legal services and more. 

The Sleep Charity advocates for improved sleep support and access to free, high-quality information. 

The Stroke Association supports individuals in rebuilding their lives after a stroke. They offer specialist support, fund research, and advocate for ensuring the best care and support for stroke survivors.

Childhood Stroke:

For those affected by childhood stroke, the Childhood Stroke Support team answers questions and connects individuals with practical information and guidance.

• Visit the Childhood Stroke website for more details
   

SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).

Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include:

The Tavistock and Portman NHS Foundation Trust is a specialist NHS mental health trust focused on training, education, and providing a full range of mental health services and therapies for children, families, young people, and adults.

Examples of their services include:

The Tottenham Hotspur Foundation focuses on specialist programs with these core objectives:

• Improving achievement
• Building community cohesion
• Promoting healthy lifestyles
• Supporting people with disabilities

Examples of what they offer include:

Turn2us is a national charity offering information and practical help to people facing financial insecurity. Support includes a Grant Search tool and PIP helper

Guide Dogs Charity and the National Sensory Impairment Partnership (NatSIP) produced Reasonable Adjustments in Schools guidance.

This guidance is designed to help teachers, schools, and local authorities ensure that the UK's 41,000 children and young people with vision impairment can access better support throughout their education.