SEND Directory

Scope is a charity in England and Wales dedicated to disability equality. They offer practical information, emotional support, family and employment services, and a wide range of advice and support, including information on benefits, legal matters, and disability equipment.

For more information or to access their advice and support, visit the Scope website.

We are a warm and welcoming group of parents and carers of children and young people with SEND in Haringey.

We aim to offer support to each other, share information, listen to our members’ experiences and views, and give a collective voice to parents and carers of children with SEND in Haringey.

We hope that our strong, shared voice will mean that services for our children and young people will improve.

Sense is a national charity that supports and campaigns for children and adults who are deafblind or who have complex disabilities to communicate.

They provide tailored support, advice, and information as well as specialist services to all deafblind people, their families, carers and the professionals who work with them.

In addition, they support people who have single sensory impairment with additional needs.

The NHS's Services and Support for Parents website provides information and general support services for new parents. 

• Visit the NHS Services and Support for Parents website

Tips for new parents

A quick guide from the NHS with essential tips on caring for your baby during the early weeks. 

Shine is a national charity providing specialist advice and support pre-birth and throughout life, to anyone with or affected by:

• Spina Bifida
• Hydrocephalus
• Normal Pressure Hydrocephalus
• Anencephaly
• Encephalocele - also may be known as Cranium Bifida
• Tethered Cord
• Idiopathic intracranial hypertension
• Chiari II Malformatio 

Shine provides a range of support such as benefits, support for carers, employment and disability, education, legal services and more. 

The Sleep Charity advocates for improved sleep support and access to free, high-quality information. 

The Stroke Association supports individuals in rebuilding their lives after a stroke. They offer specialist support, fund research, and advocate for ensuring the best care and support for stroke survivors.

Childhood Stroke:

For those affected by childhood stroke, the Childhood Stroke Support team answers questions and connects individuals with practical information and guidance.

• Visit the Childhood Stroke website for more details
   

SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).

Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include:

The Mental Capacity Act (MCA) 2005 is an important law for people with a learning disability who are 16 or older. The MCA is designed to protect and empower people who may lack the mental capacity to make their own decisions about their care and treatment.

For more information: