SWAN UK is the UK's only dedicated support network for families affected by undiagnosed genetic conditions, often called syndromes without a name (SWAN).
Their mission is to ensure every family receives the support they need, regardless of diagnosis status. Their efforts include:
- Building and nurturing a supportive community for families of children with undiagnosed genetic conditions
- Providing high-quality information and services to ensure families have access to the best support
- Increasing public and professional awareness of syndromes without a name and the challenges families face
Membership in the SWAN UK community is free. Visit their website to learn more and register as a member