Epilepsy support and advice

Some people with a learning disability have epilepsy. It is much more common for people with a learning disability to have epilepsy than for everyone else. About 1 in 3 people (32%) who have a mild to moderate learning disability also have epilepsy.

The more severe the learning disability, the more likely that you will also have epilepsy.

Many people will be taking regular medication to manage their epilepsy. For some people, managing epilepsy can be more difficult.

Haringey Learning Disability Team does not have a specialist epilepsy nurse, but but all community nurses in the team know about epilepsy.

Nurses can also help by:

• Offering support in monitoring your seizures (fits).
• Finding out what might trigger your seizures.
• We will help to make an emergency plan in case your seizure does not stop, and you need rescue medication. 
• We can talk to other services other services if it is difficult for you to attend an appointment, and make sure they make reasonable adjustments.